Murkowski has been a champion
for patients with ALS
By Linda (Teal) Kreider
August 12, 2010
I have been going to Washington DC since 2006, when my father
Mel Teal, was diagnosed with ALS, also known as Lou Gehrig's
Disease. My friend, and former Ketchikan resident, Jenny (Gore)
Dwyer and her husband, Pat, who also has ALS, have joined me
as well. Jenny was recently named "Advocate of the Year"
for ALS, and Senator Murkowski was there to see her get the award.
Senator Murkowski and her staff have always taken the time to
listen, and I greatly appreciate all that she has done for Alaska,
especially her continued support for ALS. Without her support,
we would have never seen the ALS Registry Act passed.
Senator Lisa Murkowski has been a champion for patients with
ALS --also known as Lou Gehrig's disease. She has taken on this
cause and has fought through political landmines for our cause.
Fortunately in 2008, she succeeded in helping to pass the ALS
Registry Act which provides for a database -- a registry to compile
information from all individuals, nationwide, who have been diagnosed
with ALS. For something as simple as a national registry, it
is shocking that for decades this legislation has alluded those
suffering from ALS and their families. Thanks to Lisa, this is
one less thing those with ALS need to worry about.
It's been over 70 years since
Lou Gehrig was diagnosed with ALS and yet we're not closer to
cure. Thanks to Lisa Murkowski's heavy lift to push this bill
over the finish line and have a registry enacted into law, we
are now one step closer to finding a cure for ALS.
Thank you Lisa for your perseverance
and for your passion for helping us. You truly empathize with
your constituents and have helped us achieve a huge victory.
Linda (Teal) Kreider
Ward Cove, AK
Received August 11, 2010 -
Published August 12, 2010
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